Gold Coast Marathon 2010

We would like to thank everyone for your support by being a part of our little team at the Gold Coast Marathon on Sunday on 4th of July. We hope everyone had as much fun as we did.

Our bunch of balloons seemed to catch a lot of attention before, during and after the race, we had a lot of mention over the loud speakers at the start and at the end of the race, we are pleased with the amount of attention we got.

We also had a golf day at Bribie Island and with these two events running on the same day, we have already raised more than $5,000 for us this financial year. This will put us in a good start to support the specialist Rett Syndrome Clinic at Mater Hospital we just kicked off at the end of June.

We'll be updating more photos on the page real soon!
Finally, thank you all very much for your kind support and generous donation, we really really appreciate it a lot.

Rett Clinic @ Mater Children's Hospital!

Today, Pia attended the Rett Syndrome Clinic at Mater Children's Hospital!

It came to us as a very big surprise, on how quickly we got to this point.

We had a very productive meeting with the key people at the Mater Children's Hospital at end of April this year, and 2 months later, the long awaited Rett Clinic in QLD has started.

It is still a very early stage, so the first few families who would be attending in the next few months will be used to fine tune how the clinic will operate.

Initial session we had with Dr Honey Heussler was all about gathering all the information on family, Pia's development and current state of health. Then looking for areas where there might be a concern or issues we have, and plan the next steps for us.

We've achieved our first goal to get the Clinic clinic started in QLD, now we'll need to support it and make it work. So, if you live in Qld with a child with Rett Syndrome and would like to know more about how to attend the Rett Clinic, please contact us at info@silent-angels.org.au

Pia's horse riding again

After many month of waiting, finally Pia has got back on the horse at Riding for the Disabled Association.
She enjoys the interaction with the horse and tries to get her body balanced as much as she can, but still need a lot f support.















On the initial ride, we had to make little adjustments while Pia was riding to get her to balance properly and make it as comfortable as possible.

We had to settle with a Rugby Headgear instead of a proper horse riding helmet, as it was too heavy for Pia to keep her head up, see how Pia's got the head up and looking around

Then it was fun time for Pia, she had a great time on the horse, around the track and even for a short Bush Walk.


It has made one of her Child Care days a bit shorter for Pia, but I'm sure she wouldn't mind.

We have Pia's photo from the last time she was riding in 2008.















And he very first ride when she was 20 months old in 2006
















The foam cushion Pia's using on the first and the last picture are the same.
Tha's how much she's grown..

Angel Week 2009

Angel Week to raise awareness for Rett Syndrome is from 23 - 29 November.

There will be Angel Ornaments ($5), Key Rings ($5), Pins ($5) and Wristbands ($3) will be sold at Ed Harry Menswear stores across Australia.

Please support our efforts to raise awareness and raise sufficient funds for Rett Syndrome Research in Australia, that are on the forefront of research, recently identified a genetic variation that influences the severity of symptoms in Rett Syndrome.

Spring Celebrations at Sanctuary Cove

On 21st October 2008, we were one of three Charities participated in the Spring Celebrations event at Sanctuary Cove.It was a mainly a Fashion Parade at the Sanctuary Cove Village Cinema, but as a participating Charity, we were allocated one of the stand leading to the entrance pf the Village Cinema.Were were closest to the main road, an ideal location to get noticed.

We had our Merchandise, Pens, Wristband, Scented Candles, etc. as well as our supporters Eda, providing us with her superb Home Made Jams, Cakes and Cookies and Revella, for her beautiful Hats, Fascinators and Hand Painted Cards on sale at our stand.

It was another perfect day to spend the day out in he public, trying to spread the word, raise awareness and raise much needed funds for research.We had our Angel Pia looking after the Merchandise in the morning, and for the evening session our son Kye came to help mind our stand.

It was a very good day for us, we were able to reach out to a different audience and the combined sales of our merchandise and Eda's Home Made Goodies raised around $800!!

We would like to thank all of the kind people who have assisted in setting up and running of the event, Lucia, Eda, Revella and to the participating Stores supporting the event.And most of all, thank you to everyone whom we spoke with on the day, your support and awareness is making a difference.

Gold Coast Marathon 2009

It’s been a year since we started our charity, Circle of Silent Angels Foundation. The main purpose of our organization is to raise awareness for this debilitating disorder and to raise fund for the researches conducted in Australia working towards finding a treatment and ultimately a cure.

On 5^th of July 2009, our very first awareness building event, at Gold Coast Marathon was a great success.

We had total of 93 team members registered for our team, mostly for 5km Walk, but about a dozen in 2.25km Junior Dash and a sole runner for the 10km Run.

The day was beautiful with absolutely no sign of rain, perfect outdoors weather. We have set up our marquee at the top of the hill overlooking the

Race precinct on one side and the race track on the other side. With our Major Sponsor Watermark Hotel Group providing us with a large marquee, we were able to screen our 10 minutes version of the documentary film inside, and Sausage Sizzle happening outside.

Out of 93 team members we had close to 80 turn up on the day to participate, and there were some extra family members for extra support and we had Pia's friend, Ruby who is 3 year’s old also affected by Rett Syndrome with her mum, Annabel, at the race enjoying the perfect day. These girls might not be able to talk, but they touch hearts of everyone who comes to know them, and on the race day, they would have touched many more hearts with their precious smiles.

We have enjoyed this great event and started our first major awareness building event, also with thanks to the generous donations and merchandise sales on the race day, we were also raised close to $1,000.

This will help us move closer to our dream and put more smiles on these beautiful angels faces in the future.

First Step

Thanks to the support and generosity of our family and friends, we have raised over $10,000 dollars in the 2008-2009 financial year, and the first cheque was made out to the researchers at Westmead Children’s Hospital in Sydney in last week of June 2009.

It is not much compared to the mountain o research needed to find a cure, but we hope our first step can someday reach our ultimate goal of finding a cure.

We would like to thank all the families and friends who have contributed to our cause, and to support our our Silent Angels.